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Community supports 10-year old Alden boy after hearing his cancer has returned and is now terminal

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Thomas Ackley, Jr – known as TJ – always seems to have a smile on his face. At ten, he’s a feisty little guy – who has an entire community supporting him.

TJ was first diagnosed with Neuroblastoma and bone cancer in 2013 – when he was just 5-years-old. He underwent round after round of chemotherapy, surgery, radiation, two stem cell transplants and many other procedures. He is a fighter. And, after two years battling cancer – TJ was declared cancer free. He was officially in remission.

Routine tests followed on a regular basis. TJ’s mother, Kerry Miller told me there was always fear the cancer would return, “Every single time we would go for a scan – we wondered. We would sit on pins and needles and we would wait.”

 

 

And just last week – incredible heartbreak as the family learned TJ’s cancer was back.

Doctors told TJ’s parents that their little boy is now facing stage four terminal cancer. The only hope now, according to Kerry, is an experimental procedure called MIBG Therapy. That will likely be the next step. Although, there is no MIBG done locally in Western New York – that will not stop this family. Only about a dozen hospitals in the country have this therapy – including – New York City, Philadelphia, Memphis, Boston & Seattle – among others. They’re waiting to see who can take him.

The family will have to leave their home, but Kerry says make no mistake – they’ll do whatever it takes, “We have no choice. There is not a tag on my child’s toe so you can bet that I will do whatever I have to do and I will do it with a smile on my face so that he can have a smile on his face.”

 

TJ’s father and stepmother, Thomas and Melanie Ackley – along with Kerry and her husband, Larry have rallied around their little guy.  And many in the family – and friends as well – have shaved their heads in solidarity and support of little TJ.

 

     

 

 

Kerry says they are incredibly grateful for the amazing support from their Alden community, the Alden school district, family, friends, co-workers and even strangers.

TJ is headed into two weeks of chemotherapy while more decisions are made. His mom says she has been honest with her son, telling him everything.

Friends of the family have started a fundraising page to help the family with the mounting medical and living expenses as they care for their boy – if you would like to help here is the information: https://www.facebook.com/donate/191884031564679/

Follow TJ’s journey on his FB page HERE

 

  

 

Also, in case you’re wondering – TJ loves hot wheel cars and tracks, trains and arts and crafts that will help keep him busy.

 

 

Just talking with Kerry on the phone, you can’t help but be inspired by her courage, faith and hope.  We are sending many prayers to TJ and his family – and we hope you will, too. We will keep you updated as that is what Kerry and the family want.

 

TJ’s journey

TJ's Journey

TJ's Journey. You can find more information and learn how to help here. https://totallybuffalo.com/community-supports-10-year-old-alden-boy-after-hearing-his-cancer-has-returned-and-is-now-terminal/

Posted by Totally Buffalo on Sunday, February 18, 2018

 

Mary Friona

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Mary Friona

Following my heart with my husband and four daughters. An Emmy Award winning journalist lucky enough to work in television & radio for 20 years - seeing wonderful places, meeting great people and telling their stories.

Comments (5)

  • Avatar

    Christine

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    Their is another little boy going through the same thing he is 3years old .He lives in Cheektowaga, And is going to NYC for the same treatment. You can find out more on Facebook and maybe ask question.it’s Bentley’s Battle. Hope it helps .

    Reply

  • Avatar

    Nancy Hutzler

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    Dear Thomas,
    This is Mrs. Hutzler. I was so saddened to hear that you are sick again. You are in my thoughts and prayers every day. Hang in there buddy and know that so many people love you. You are one of my favorite students and I miss you very much. Be strong and know that God is with you! You are so loved by your family and friends (and teachers)!!!! I hope to see you soon. I will visit you as soon as I can. I LOVE YOU, THOMAS!!! 🙂
    Love, Mrs. Hutzler

    Reply

  • Avatar

    Mrs.Radoszewski

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    Hi TJ !!
    This is Mrs. Radoszewski. Do remember me? I remember you very well!
    You were the bravest student I ever had! ???And you were always smiling ?and always kind and friendly to all of your classmates. We all loved TJ in Kindergarten and we love you now! ?‍?‍?‍??‍?‍?‍? I am so sorry that you are sick again and have to start treatments again.
    I’m praying for you every day!
    I’m sending big hugs your way!
    I’m a cheerleader for Team TJ!!!??‍♀️
    Love,
    Mrs. Radoszewski
    p.s. I hope I can come to visit you soon! ?

    Reply

  • Avatar

    Kerry

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    Tj said he would love to see you!! You can come visit anytime!! Xoxo Tj strong

    Reply

    • Avatar

      Mary Friona

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      I would love to come visit that sweetie pie!!!!

      Reply

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